Julie Adams, a bohemian free spirit who likes to challenge the status quo in healthcare, and Lorna Cook, a dynamic powerhouse of networking and marketing energy, founded chemo@home in 2013. We are passionate about growing chemo@home across Australia; aiming to provide true patient centred care to cancer and chronic illness patients and their families. This blog is partly health information and partly a reflection of our personal experiences and opinions. Happy reading. www.chemoathome.com.au
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Is chemo in the home a “pink batts disaster” in the making?
There are few of us who escaped the news coverage of what
happened when the Australian government wanted to boost the economy back in 2009, by
funding the installation of “pink batts” into homes.
Tragically, four young men died, from what
was found to be a lack of oversight by the government resulting in massive
system failures. Simply put, the
government provided the money, but did not ensure that there was the appropriate
legislation, regulation or training available to make it safe. And where there is money to be made, there will
always be some who will want to profit from it.
Some of these people will have no regard for the safety of the product
they are supplying, some will be ignorant of what is needed to make it
safe. The result is the same.
When people ask me, “is giving chemo in the home safe?”, I
find it difficult to answer. To be
honest the answer is both yes and no.
I have worked managing a “home chemo” service for just under
20 years. I’ve developed a robust set of
systems and process to treat cancer and chronic disease patients, who are
receiving some of the most complex and risky chemotherapy and immunotherapy
treatments, safely, in the home. Arguably,
I am the most experienced health care professional, and chemo@home is the
largest, most skilled and experienced health care service in Australia
delivering this type of service.
Over the last 12 months, numbers of other businesses have
put their hands up to say, “we can do chemo in the home too”. After the Medibank Private ads, featuring
chemo@home and our patient Liam, the number of business who came out of the woodwork
saying they can do this reached fever pitch.
So, if chemo@home can do it safely, can’t everyone?
Let me explain why.
Most people, I think, would be shocked to know that to
provide a home health service you do not need to be licensed or accredited.
Licensing of health services is done at a state government level, and in each
state, the health departments license hospitals, but not “home hospitals”. This means there is no state government
oversight of the home healthcare industry anywhere in Australia. Accreditation, which is a process that
ensures national healthcare standards are in place, is also not required for
home healthcare services.
Giving chemotherapy and immunotherapy medications in the
home requires not only an in-depth knowledge of all the national and
international guidelines around the safe prescribing, dispensing and
administration of these highly specialised medications, but the skill and
experience to implement the same.
I was speaking with a researcher recently who was involved
in a trial giving an immunotherapy medication at home. The nursing staff administering the
medication in the home did not carry with them any resuscitation equipment. No adrenaline. No defibrillator. Two of the most important things needed if a patient’s
heart stops. When I asked why, the answer was, “there is less than a 1% chance
of a reaction, so it wasn’t deemed necessary”. I then asked, “so how many
infusions did you given in the trial?”
The answer was, “120”. 120
infusions, 1% reaction rate. So, this begs the question, what happened to the
The reality is portable “pocket-sized” defibrillators are
expensive. Adrenaline is expensive and has
a short expiry. Having a protocol to use
both takes expert input on resuscitation procedures. Being competent in using the protocol
requires the nursing team to be trained and skilled. As a health service provider,
you can either put patient safety first and invest in these aspects of care, or
not. chemo@home is committed to
providing the safest environment possible and will not compromise the safety of
our patients because the alternative is easier of cheaper.
Additionally, to my knowledge, there have been five major
chemotherapy errors in Australian Hospitals over the last 10 or so years. By
major I mean that there was a breakdown in the system which lead to multiple
patients in the hospital being given the wrong dose of a chemotherapy
medication. In each of these situations
a review of the errors pointed to a lack of “governance”, over how chemotherapy
protocols were managed as being the major reason these occured.
chemo@home has robust processes around how we chose which chemotherapy
and immunotherapy treatments we give at home, and how we administer these to
make it as safe as possible. Currently,
we give around 140 different chemotherapy and immunotherapy regimens at home,
and we continually improve our processes if, or when, problems arise. We pride ourselves on having one of the most
advanced cancer management systems in Australia.
The government is very keen to develop the home healthcare
market as it is a more sustainable way of delivering care.
Private Health Insurers are keen to have home healthcare as
part of their offering, to give their members choice.
Hospitals are now seeing it as a way to cope with the
increasing numbers of patients that are putting their day-units and wards under presssure.
Patients and their families want treatment at home as is it
is a kinder, more convenient and comfortable way to receive care.
It is clearly the way of the future.
But without appropriate regulation and legislation in place,
is it really safe for patients to have their chemotherapy and immunotherapy
treatments at home? The answer is, unless they are receiving their home healthcare
from an experienced, reputable, accredited service like chemo@home, maybe not.
Federal and state government need to step up and plug the gaps
in the regulations and legislation.
Private health insurers and hospitals need to be very careful who they
contract with. Patients need to be aware
that not all healthcare services provide care to the same standard.
The last thing we want is for home chemo to
become the next “pink batts disaster”.
The patients are relying on us to keep them safe. We have a duty to do so. Julie
I don't much like shopping. Not for food, clothes,
homewares, furniture, cars or houses. But give me a cause, a reason to think
more deeply and then I become a passionate shopper. The ultimate
conscious consumer. Being a conscious consumer is defined as having an
increased awareness of the impact of purchasing decisions on the environment
and on health and life in general. It is of course a double-edged sword. No decision can be made on
the spur of the moment, far too much thought needs to go into every
purchase. The joy, however, from having purchased an item that attains
the level of accountability I demand is immense. It started years ago with "buy Australian". Something
which has turned into Australian made, Australian owned, Australian produce...
oh and even if it is Australian I want it as local as possible. I support brands, the ones that disappear one by one on our
duopolies shelves, who look after the environment, who understand their supply
chain. Carbon neutral,…
Recent media reports have highlighted the somewhat complex
and hidden costs associated with health care.The Four Corners report “Mind the Gap” focused on out-of-pocket expenses
and hidden fees from surgeons.Whilst
the ABC medical report on “Secret Pacemaker Payments Boosting Private Hospital
Coffers” focused on the hidden rebates hospitals receive for using various
medical devices. The two issues are separate, but very much related. Both point to the lack of transparency of
financial interactions between specialists, hospitals and a variety of other
stakeholders in the health care market.
The first media report highlighted the issue around
“informed financial consent”.It is
mandatory for all patients receiving care from a specialist in a private
hospital to sign a document stating that they agree to the charges related to
the procedure or care for which they are being admitted.But how “informed” is the financial
consent?At a vulnerable time, how
likely is a patient to shop around to ge…
Have you ever believed in something, something you thought everyone else believed in as well; only to find out that in fact nothing could be further from the truth? Just after we started chemo@home 5 years ago, a very high up health executive said to us during a meeting, "It's not about the patients, don't bring emotion into this". It was possibly the first time (but definitely not the last time) that such a jaw dropping statement like this was said to us. We had started chemo@home on the entire principle that treatment WAS ALL ABOUT THE PATIENT. For us, the patient and their family are at the centre of everything we do. Their choices, about their treatment, is what matters most. To find out that there were health managers and executives who put other concerns before the patient was, for us, mind blowing. What are these concerns you might ask.... well let’s just say that a lot of emphasis is placed on a health services "activity", the number of staff they …